Does someone have an answer!
I read this article on the NY Times Motherlode blog last night at 11:45pm, and knew I had to do what I could to help. Please read on.
I know what this mom is talking about; I have felt her pain, well sort of.
When Taller, my second son was born he couldn’t keep his food down. After every nursing session he would throw it all up. When you laid him down to change his diaper or to get a break, he would gag as if he couldn’t get any air. It was beyond scary. That began our 10-month saga.
For 10 months, nothing like what Sarah is going through, but for 10 months he and I never slept for more than 20 minutes at a time. You read correctly, we never slept for more than 20 minutes straight. I know sleep deprivation, and this sweet mom, Sarah, is way past that point.
Before I make my suggestion, can any of you help? If you have a suggestion, not the normal, try a warm bed, let her cry it out, trust me she’s way past that. If you’ve lived this, and solved this, then go to her blog. http://networkedblogs.com/d5h6g
She’s probably too tired to read emails of support, so just say a prayer and leave it at that.
Here’s what happened for us. We found Osteopathy. My son was born quickly, almost completely in the water. His head never really went through the necessary rhythmic motion of the birth canal. His head never unfolded correctly. You couldn’t see it, you couldn’t feel it, unless you were trained.
We went to every Dr., we could find. They had no idea why he would gag, and most importantly to me, they had no idea why he wouldn’t sleep. Then we found a brilliant man, and Osteopath. He laid my son down on the table, touched one spot and told me the best words I ever heard, “I know what this is and we will fix it, and he will sleep!”
It took regular visits for 10 months to fix it, but he began sleeping after the first session. We need to retrain him the first night by letting him cry for about 5 minutes and he was out like light.
I’m not saying this is what Sarah needs, but maybe she can find out what’s going on by seeing an Osteopath. P.S. it can’t just be a regular Osteopath, he has to be trained to work on kids.
If you know anything, please help her. Thank you, from one who knows her pain!
HITTING THE WALL: WHAT IT FEELS LIKE
By Sarah Maraniss Vander Schaaff
The panic—or sensation that I could not breathe and was near death—occurred after I had the very real feeling that I was about to collapse or pass out. It turns out that after two and a half years of bad sleep, and four months of really bad sleep, at the hands of a clinically diagnosed “bad sleeper” of a child, a mom can lose it.
The first thing I’ve lost is the feeling that I am sleepy. I am so chronically tired that I am no longer tired.
The second thing I’ve lost is my appetite.
I’ve also lost my patience, at times my optimism, my concentration, and my “free time,” but losing my appetite is probably what led to the loss of a third thing in my life—equilibrium. Equilibrium in the literal sense—I got dizzy and almost collapsed. And equilibrium in the emotional sense—the dizziness made me panic and I lost my peace of mind.
All this manifested in the last five minutes of my beloved Zumba class, during which I was dancing to one of my least favorite songs, the kind of tune that, even on the best of days, makes me want to leave the room.
On this day I fled.
I grabbed my kids from the child care area, made my way to the front desk of my gym and sought out the most maternal and competent looking person I could find.
“I feel like I am going to pass out and I want you to know who I am,” I told the woman.
She suggested I take a seat, calmly handed me a chocolate covered LUNA bar and a cup of water and searched for my file.
I didn’t know if I was actually going to faint, but if I did, I wanted someone to call my husband and look after my kids until he arrived. My oldest knows our home phone number–a relic my husband never answers, much less checks messages on, and my youngest knows that she is “2 years old” and is in love with Tyrone from the Backyardigans, but when it comes to identification, I’d say that’s about as far as it goes.
“Two a’s and two f’s,” I muttered. The bane of a woman married to a man with a Dutch last name, I realized, was that I was going to waste my last moment of consciousness doing what I do in the more mundane moments of my life: explain to some poor listener the key to correctly spelling Vander Schaaff.
The woman found my file, and I moved from feeling faint to feeling like I could not breathe.
We called my husband, who hopped in his car. She called 9-1-1 and got an ambulance on the way. In the meantime, I sipped water, tugged at my shoes, and apparently, at the annoying tank top clinging to my chest.
“Why don’t you put this T-shirt on?” another woman said, handing me a loose fitting T-shirt from behind the counter. “You’re sort of….exposing yourself.”
So, that was why the men sitting in the chairs near their locker room had put down their copies of US News and World Report.
I put the T-shirt on and slipped my jogging bra off beneath. As much as I breathed, I felt like I was getting no air and that the next breath would be more restricted than the first. My hands shook, my stomach felt queasy, and even as I continued my slow conversation with the helpful team who had now surrounded me, I felt lost in another place.
The E.M.T.’s arrived before my husband.
They checked my blood pressure; my chest; my lungs.
“When was the last time you ate?”
I had part of a muffin walking through the grocery store at 8 a.m. that morning.
Then I remembered I’d not had lunch the day before. Or the day before that. Or the day before that.
“I haven’t been sleeping much,” I said.
It’s been particularly bad since August of last year, but it all started, oh, I don’t know, shortly after I went into labor on June 18, 2008.
I sometimes wonder what it would take to start to chip away at the deep fatigue I feel. An article in Scientific American on accumulated loss of sleep, something called sleep debt, suggests that it would not take a single night or two of sleeping well. You have to look at the larger deficit, which since Ava’s latest bout began in August is at least 270 hours.
It would take more than 10 days of consecutive sleep to make up for that, or nine months of napping for at least an hour. Even if it were humanly or logistically possible to do either of those things, I’m not sure I would.
I am, in my own way, as stubborn as my child who does not want to sleep. I have been told that I am the “goose that lays the golden egg”, that I must take care of myself so that I can tend to my children, and that I should find a way to catch up on sleep even as I figure out a way to help Ava with her own problems, and not wait until it’s all “fixed.”
But there is a part of me that has not believed that I am vulnerable or can be tired out to the point of passing out; that does not accept that while working towards the solution with Ava, that I need a compromised, messy, imperfect coping system to make up for the losses in sleep I’ve incurred.
And partial solutions only make me more frustrated that something so simple, so essential, so basic as sleep, is such a horrendously difficult proposition in my house.
Sometimes, because I am conflicted about acknowledging the severity of our problem and because I used to teach public speaking, I like to recite to myself a passage from Lincoln—completely out of context and appallingly out of proportion:
“The world will little note, nor long remember” . . . the fact that Ava doesn’t sleep.
But, the body does.
We’ve made some baby steps, with the help of a second specialist, but until the problem is consistently solved, we have to make do with the frustrating, maddening muck of being in the middle. I have to accept an element of failure—that we are failing—and therefore, what do we do until we succeed?
It’s no longer a question of “what do we need to do to succeed?” It’s a question of “while we are trying, what do we do?”
One reader and friend, whose own child exhibited similar sleep issues until the age of 5, suggested that I end this post by posing a question to you, the reader. What have you done? Before a solution clicked, before a child outgrew a phobia or a problem reached a long-hoped for solution or you decided there might not be one, what did you do to persevere while you were in the “middle?”
Here’s hoping you get what you need and can sleep!
Sharon Silver is the author of Stop Reacting and Start Responding and The Authentic Parent Series. Go to proactiveparenting.net to download two free chapters from her book and learn about other Proactive Parenting programs. Find Sharon on Twitter and Facebook.